This is where we’ll share updates, news, lessons learned, and the occasional random thought from behind the scenes at Your Crisis Guide. No gates here — the blog is open to everyone.
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How to keep your child connected to friends, classmates and school life during months of treatment, and how to keep a sibling from getting lost in the shuffle.
Who to call at the school, what to get from the oncologist in writing, and how 504 plans, IEPs and home instruction actually work in New Jersey and New York.
Your child’s legal right to home and hospital instruction in New Jersey and New York, free tutoring and online learning that actually work from a hospital bed, and the learning late effects to watch for after leukemia treatment.
How to keep your other children, your partnership, and your family routines standing while one child is in leukemia treatment.
Where to turn tonight, next week, and for the long haul when the fear and exhaustion of your child’s leukemia treatment are more than you can carry alone.
Realistic ways to sleep, eat, move, and accept help while you are living in a hospital room with your child.
Free and low-cost camps, wish trips, family events and museum passes built for families with a child in cancer treatment, and how to actually get a spot.
Where to find other parents online at two in the morning, how to get into the private groups that are actually moderated, and how to spot the scams and bad medical advice.
How to find the help that is physically near you: 211, your hospital social worker, county and faith-based agencies, service clubs, and the New Jersey and New York childhood cancer foundations that pay bills and show up.